Peeps HIE is a UK charity supporting families affected by hypoxic-ischaemic encephalopathy (HIE), a brain injury associated with reduced oxygen or blood flow. It provides free emotional support, counselling, peer connections, practical assistance, and information. Families can access personalised support following diagnosis, throughout childhood and after bereavement when needed.
Rainbow Trust Children's Charity provides free practical and emotional support to families caring for a child with a life-threatening or terminal illness. Dedicated Family Support Workers help parents, children and siblings manage everyday challenges, hospital visits and emotional distress, offering personalised assistance from diagnosis through treatment, bereavement and beyond.
Shine is a UK charity supporting individuals and families affected by spina bifida, hydrocephalus and related neurological conditions. It provides specialist health information, emotional support, practical advice and community connections. Parents can access guidance during pregnancy, following diagnosis, and throughout childhood, helping families understand conditions, navigate services, and build confidence.
Together for Short Lives is a UK charity supporting families caring for children with life-limiting or life-threatening conditions. It provides free emotional support, practical guidance, financial information and connections to children's hospice services. Families can access specialist information, peer communities and support navigating complex care needs, including bereavement and respite.