Practical support
Shine – Specialist Support for Spina Bifida, Hydrocephalus and Related Conditions
Shine is a UK charity supporting individuals and families affected by spina bifida, hydrocephalus and related neurological conditions. It provides specialist health information, emotional support, practical advice and community connections. Parents can access guidance during pregnancy, following diagnosis, and througho...
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Shine is a UK charity supporting individuals and families affected by spina bifida, hydrocephalus and related neurological conditions. It provides specialist health information, emotional support, practical advice and community connections. Parents can access guidance during pregnancy, following diagnosis, and throughout childhood, helping families understand conditions, navigate services, and build confidence.
Specialist advice: Spina bifida, hydrocephalus, and related conditions.
Pregnancy support: Guidance following antenatal diagnosis.
Family support: Little Stars programme for children aged 0–12.
Practical help: Education, benefits, housing and care guidance.
Connections: Peer support and community activities.
Contact: 01733 555988.
Important: Information and support do not replace specialist medical care.
Sources and review
Organisation: Shine Registered charity number: 249338 Direct support: https://shinecharity.org.uk/pages/support Support for children: https://shinecharity.org.uk/pages/support-for-children Parents and carers: https://shinecharity.org.uk/pages/support-for-parents-and-carers Contact: https://shinecharity.org.uk/pages/contact Telephone: 01733 555988 Email: firstcontact@shinecharity.org.uk Office hours: Monday–Friday, 9 am–5 pm, excluding bank holidays Geographic coverage: England, Wales and Northern Ireland Cost: Free specialist information, advice and family support; some publications may be chargeable. Resource type: Condition-specific support, antenatal diagnosis, childhood disability, health information, benefits advice and family wellbeing. Source workbook: MidwifePlus Public Resource Directory Listing ID: MP-033 Source checked: 6 November 2026 Next suggested review: May 2027 Editorial status: Reviewed for directory listing Partnership status: Independent signposting; no partnership implied.
Approved 6 November 2026 · Review due 5 May 2027
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